Representational structure of microcephaly and self-image from mothers of children with the neurological affliction

Keywords: Behavioral medicine, Microcephaly, Psychology, social, Self concept

Abstract

This study aimed to analyze the representational structure of microcephaly, as well as the self-image that mothers of children with the illness possess. There were 105 Brazilian women, aged between 20 and 50 (M=31; SD=7.32), who live, mostly, in the south-eastern region of Brazil (39.0%). For data acquisition, in 2018, it was used the Free Word Association Technique. Prototypical analyses of the collected material demonstrated that the participants build their representations upon microcephaly based on scientific knowledge, also describing it using signs that refer to spirituality and love. When it comes to the participants’ self-image, it was possible to notice elements that support the feature resilience and other factors that are associated with self transcending characteristics. The identified representations reveal adaptive processes, based on the allocation of resilient resources that allow the participants from this study to give a different meaning of being a mother of a child with microcephaly.

Author Biographies

João Pedro Santos Cipriano, University Center - UNIESP
Undergraduate Student in Psychology at the University Center - UNIESP
Emerson Araújo Do Bú, Institute of Social Sciences - University of Lisbon Faculty of Psychology - University of Lisbon
Social Psychology PhD Student at the Faculty of Psychology - University of Lisbon and a research assistant in the Institute of Social Sciences - University of Lisbon, Lisbon, Portugal. Master’s degree in Social Psychology obtained at the Federal University of Paraiba, João Pessoa (PB), Brazil
Maria Edna Silva de Alexandre, Federal University of Paraíba
Social Psychology PhD Student at the Federal University of Paraíba, João Pessoa (PB), Brazil. Master’s degree in Social Psychology obtained at the Federal University of Paraíba. Social Psychology.
Maria da Penha Lima Coutinho, University Center UNIESP and Federal University of Paraíba
Postdoc degree in Psychology obtained at the University of Lisbon. PhD degree in Psychology obtained at Universidade de São Paulo - USP. Coordinator of the undergraduate course in Psychology at the University Center UNIESP and Professor of the Graduate Program in Social Psychology at the Federal University of Paraíba, João Pessoa (PB), Brasil.

References

Ribeiro IG, Andrade MR, Silva JM, Silva ZM, Costa MAO, Silva Vieira MAC, et al. Microcephaly in Piauí, Brazil: descriptive study during the Zika virus epidemic, 2015-2016. Epidemiol Serv Saude. 2018; 27(1): 1-11. Available from: http://www.scielo.br/pdf/ress/v27n1/en_2237-9622-ress-27-01-e20163692.pdf

Quirino EMB, Pinho CM, Silva MAS, Dourado CARO, Lima MCL, Andrade MS. Epidemiological and clinical profile of microcephaly cases. Enfermería Global. 2020; 19(57): 167-208. Available from: https://revistas.um.es/eglobal/article/view/366701/275961

Araújo JSS, Regis CT, Gomes RGS, Tavares TR, Santos CR, Assunção PM, et al. Microcephaly in north-east Brazil: A retrospective study on neonates born between 2012 and 2015. Bull World Health Organ. 2016; 94(11): 835-40. Available from: https://www.who.int/bulletin/volumes/94/11/16-170639.pdf

Cabral CM, Nóbrega MEB, Leite PL, Souza MSF, Teixeira DCP, Cavalcante TF, et al. Clinical-epidemiological description of live births with microcephaly in the state of Sergipe, Brazil, 2015. Epidemiol Serv Saude. 2017; 26(2): 245-54. Available from: http://www.scielo.br/pdf/ress/v26n2/en_2237-9622-ress-26-02-00245.pdf

Marinho F, Araújo VEM, Porto DL, Ferreira HL, Coelho MRS, Lecca RCR, et al. Microcephaly in Brazil: prevalence and characterization of cases from the Information System on Live Births (Sinasc), 2000-2015. Epidemiol Serv Saude. 2016; 25(4): 701-12. Available from: http://www.scielo.br/pdf/ress/v25n4/en_2237-9622-ress-S1679_49742016000400004.pdf

Santos José Alcides Figueiredo. Classe Social, território e desigualdade de saúde no Brasil. Saude soc. 2018; 27(2): 556-72. Available from: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0104-12902018000200556&lng=en

Freitas PDSS, Soares GB, Mocelin HJS, Lacerda LCX, do Prado TN, Sales CMM, et al. Congenital Zika syndrome: sociodemographic profile of mothers. Rev Panam Salud Publica. 2019; 43(24): 1-7. Available from: https://iris.paho.org/bitstream/handle/10665.2/49776/v43e242019.pdf?sequence=5&isAllowed=y

Albuquerque MFPM, Souza WV, Araújo TVB, Braga MC, Filho DBM, Ximenes RAA, et al. The microcephaly epidemic and Zika virus: building knowledge in epidemiology. Cad Saude Publica. 2010; 34(10): 1-14, 2018. Available from: http://www.scielo.br/pdf/csp/v34n10/en_1678-4464-csp-34-10-e00069018.pdf

Brasil. Ministério da Saúde (BR). Secretaria de Atenção à Saúde. Protocolo de atenção à saúde e resposta à ocorrência de microcefalia. Brasília (DF): Ministério da Saúde; 2016. Available from: http://bvsms.saude.gov.br/bvs/publicacoes/protocolo_resposta_microcefalia_relacionada_infeccao_virus_zika.pdf.

Goffman E. Estigma: notas sobre a manipulação da identidade deteriorada. Rio de Janeiro: LTC; 2008.

Costa Filho JA. Sexualidade no contexto da paraplegia: um estudo das representações sociais. João Pessoa. Tese [Doutorado em Psicologia Social] – Universidade Federal da Paraíba; 2017. 167 p. Available from: https://repositorio.ufpb.br/jspui/bitstream/123456789/12144/1/Arquivototal.pdf.

Barros SMM, Monteiro PAL, Neves MB, Maciel GTS. Strengthening the support network of mothers in the context of congenital zika virus syndrome: Reports of a psychosocial and systemic intervention. Nova Perspectiva Sistêmica. 2017; 26(58): 38-59. Available from: http://pepsic.bvsalud.org/pdf/nps/v26n58/n26a04.pdf.

Oliveira IG, Polleto M. Emotional experiences of mothers and fathers of children with disabilities. Revista SPAGESP. 2015; 16(2): 102-19. Available from: http://pepsic.bvsalud.org/pdf/rspagesp/v16n2/v16n2a09.pdf.

Oliveira DC. Social representations and public health care: subjectivity as a participant in the daily routine in health care. Revista de Ciências Humanas. 2000; 3(1): 47-65. Available from: https://periodicos.ufsc.br/index.php/revistacfh/article/view/24123

Moscovici S. Representações Sociais: Investigações em psicologia social. Petrópolis (RJ): Vozes; 2017.

Abric JC. Abordagem estrutural das representações sociais: desenvolvimentos recentes. In: Campos PHF, Loureiro MC. Representações sociais e práticas educativas. Goiânia: UCG; 2003. p. 37-57.

Coutinho MPL, Do Bú EA. 2017. A técnica de associação livre de palavras sobre o prisma do software tri-deux-mots (version 5.2). Revista Campo do Saber. 2017; 3(1): 219-43. Available from: http://periodicos.iesp.edu.br/index.php/campodosaber/article/view/72/58.

Camargo BV, Justo AM. 2018. Tutorial para uso do software IRAMUTEQ: Interface de R pour les Analyses Multidimensionnelles de Textes et de Questionnaires. Laboratório de Psicologia Social da Comunicação e Cognição, UFSC, Florianópolis. Available from: http://iramuteq.org/documentation/fichiers/tutoriel-portugais-22-11-2018.

Sá CPD. Núcleo central das representações sociais. Petrópolis (RJ): Vozes; 2002.

Brasil. Ministério da Saúde (BR). Resolução 510/2016. Diretrizes e normas regulamentadoras de pesquisas envolvendo seres humanos. Brasília (DF): Ministério da Saúde/Conselho Nacional de Saúde; 2016.

Kochla KRA. O encontro do sentido: uma luz para a trajetória resiliente das mães que vivenciam o câncer. Curitiba. Tese [Doutorado em Prática Profissional de Enfermagem] - Universidade Federal do Paraná; 2014. 105 p. Available from: https://acervodigital.ufpr.br/bitstream/handle/1884/37347/R%20-%20T%20-%20KATIA%20RENATA%20ANTUNES%20KOCHLA.pdf?sequence=1&isAllowed=y

Nascimento IP, Gomes RM, Vieira SNS, Guedes TP, Santana GJ, Silva FN. Virus zika and microcefalia: The mother faces the diagnosis of the son. Revista Interscientia. 2019; 17(1): 54-65. Available from: https://periodicos.unipe.edu.br/index.php/interscientia/article/view/918/614.

Mata, CCSD. 2018. A questão do vínculo mãe-filho: o mito do amor materno. Colegiado de Psicologia. 2018. Available from: https://repositorio.pgsskroton.com.br/bitstream/123456789/21295/1/01-%20A%20quest%C3%A3o%20do%20v%C3%ADnculo.pdf.

Kierkegaard S. As obras do amor. Petrópolis (RJ): Vozes; 2005.

Sousa DS. The Christian Ethic of Love in Kierkegaard. Perspectiva Teológica. 2018; 50(1): 111-34. Available from: https://www.researchgate.net/publication/324822189_A_ETICA_CRISTA_DO_AMOR_EM_KIERKEGAARD

Campos MMMS, Sousa TC, Teixeira GP, Chaves KYS, Araújo MVUM, Sousa MR. Challenges and perspectives of mothers of children with microcephaly due to Zika virus infection. Rev. RENE. 2018; 19: 1-8. Available from: http://periodicos.ufc.br/rene/article/view/32839/pdf

Andrade FMRR. O luto do filho idealizado: pais da criança com síndrome de down. Lisboa. Dissertação [Mestrado em Psicologia Clínica] – Instituto Universitário de ciências psicológicas, sociais e da vida; 2017. 142 p. Available from: http://repositorio.ispa.pt/bitstream/10400.12/4467/1/18716.pdf.

Hamad GBNZ, Souza KVD. 2019. Special child, special mother: the sense of strength in mothers of children with congenital zika virus syndrome. Escola Anna Nery. 2019; 23(4): 1-9. Available from: http://www.scielo.br/pdf/ean/v23n4/1414-8145-ean-23-04-e20190022.pdf

Nunes CK, Silva GFR, Santos FZ. As representações sociais da maternidade para mães de filhos/as com deficiência. Rev. Psicol. Saúde. 2019; 11(3): 79-96. Available from: http://pepsic.bvsalud.org/scielo.php?script=sci_arttext&pid=S2177-093X2019000300006&lng=pt. http://dx.doi.org/10.20435/pssa.v0i0.608.

Nascimento ACA. Resiliência e sensibilidade materna na interação mãe-criança com fissura lábiopalatina. Campinas. Tese [Doutorado em Psicologia] - Pontifícia Universidade Católica de Campinas; 2006. 201 p. Available from: http://tede.bibliotecadigital.puc-campinas.edu.br:8080/jspui/bitstream/tede/360/1/Ana%20cristina%20Araujo%20do%20Nascimento%202.pdf.

Published
2020-09-01
Section
Artigos Originais