The experience of COVID-19 through the eyes of those who presented the disease: a qualitative study

Authors

DOI:

https://doi.org/10.17765/2176-9206.2023v16n3.e11263

Keywords:

Coronavirus infections, Health-disease process, Psychological distress

Abstract

To know and understand, through the eyes of the person who had COVID-19, what it was like to have gone through this experience. Qualitative exploratory descriptive research. Study population composed of individuals diagnosed with COVID-19 referred for treatment at a Physical Rehabilitation Center. Data collection performed through a questionnaire (characterization) and semi-structured interview. The interview responses were analyzed using Content Analysis (Bardin). Participants reported a bad and difficult experience with an unknown illness. Several feelings were experienced, fear being very emphasized. Respondents had physical and emotional limitations and loss of independence. They started to worry more about their health and value family, friends, and health professionals. Early assistance to this population is important, providing means of information about the disease, psychotherapeutic and rehabilitation care, preventing long-term effects that hinder their recovery.

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Author Biographies

Keila Okuda Tavares, Universidade Estadual do Oeste do Paraná

Graduada em Fisioterapia pela Universidade Estadual de Londrina (1998). É Docente do Curso de Fisioterapia da Universidade Estadual do Oeste do Paraná-UNIOESTE, do Campus de Cascavel-PR, onde ministra a disciplina de Introdução à Pesquisa e Fisioterapia Pneumofuncional. Mestrado em Ciências da Saúde (Conceito CAPES 5) pela Universidade Estadual de Maringá, UEM, Brasil. Doutorado em andamento em Educação pela Universidade Estadual do Oeste do Paraná, UNIOESTE, Brasil.

Vilmar Malacarne, Universidade Estadual do Oeste do Paraná

Possui graduação em Filosofia Licenciatura Plena pela Universidade Federal de Santa Maria (1994), mestrado em Educação pela Universidade Federal de Santa Maria (1997) e doutorado em Educação pela Universidade de São Paulo (2007). Atualmente é professor Associado da Universidade Estadual do Oeste do Paraná. Atua na graduação e na pós-graduação Lato e Stricto Sensu. Tem experiência na área de Filosofia e Ensino de Ciências, atuando principalmente nos seguintes temas: Formação de Professores, Ética, Ciência e Religião. Coordenador geral do Núcleo de Pesquisa em Ensino de Ciências e Matemática - NUPECIM.

References

1. Mukhtar NB, Abdullahi A, Abba MA, Mohammed J. Views and experiences of discharged COVID-19 patients in Kano, Nigeria: a qualitative study. Pan Afr Med J. 2020;37(1):1-12. doi: https://doi.org/10.11604%2Fpamj.supp.2020.37.1.26609

2. Kim JE, Lee JH, Lee H, Moon SJ, Nam EW. COVID-19 screening center models in South Korea. J Public Health Policy. 2021;42(1):15-26. doi: https://doi.org/10.1057%2Fs41271-020-00258-7

3. Van Kessel SAM, Olde Hartman TC, Lucassen PLBJ, van Jaarsveld CHM. Post-acute and long-COVID-19 symptoms in patients with mild diseases: a systematic review. Fam Pract. 2021;(4):1-9. doi: http://dx.doi.org/10.1093/fampra/cmab076

4. World Health Organization. COVID-19 Weekly Epidemiological Update. Ed. 101, 2022; 1-21. [Acesso em: 22/07/22]. Disponível em: https://apps.who.int/iris/handle/10665/360561

5. Worldometers. COVID‐19 Coronavirus Outbreak. 2022 [Acesso em: 22/07/22]. Disponível em: https://www.worldometers.info/coronavirus/

6. Ramos-Casals M, Brito-Zerón P, Mariette X. Systemic and organ-specific immune-related manifestations of COVID-19. Nat Rev Rheumatol. 2021;17(6):315-32. doi: https://doi.org/10.1038/s41584-021-00608-z

7. Cervantes L, Martin M, Frank MG, Farfan JF, Kearns M, Rubio LA, et al. Experiences of Latinx Individuals Hospitalized for COVID-19: A Qualitative Study. JAMA Netw Open. 2021;4(3):1-15. doi: https://doi.org/10.1001/jamanetworkopen.2021.0684

8. Shah W, Hillman T, Playford ED, Hishmeh L. Managing the long-term effects of COVID-19: Summary of NICE, SIGN, and RCGP rapid guideline. BMJ. 2021;372(0):10-3. doi: https://doi.org/10.1136/bmj.n136

9. Ladds E, Rushforth A, Wieringa S, Taylor S, Rayner C, Husain L, et al. Persistent symptoms after COVID-19: qualitative study of 114 “long Covid” patients and draft quality principles for services. BMC Health Serv Res. 2020;20(1):1-13. doi: https://doi.org/10.1186/s12913-020-06001-y

10. Nalbandian A, Sehgal K, Gupta A, Madhavan M V., McGroder C, Stevens JS, et al. Post-acute COVID-19 syndrome. Nat Med. 2021;27(4):601-15. doi: https://doi.org/10.1038/s41591-021-01283-z

11. Cheng SKW, Tsang JSK, Ku KH, Wong CW, Ng YK. Psychiatric complications in patients with severe acute respiratory syndrome (SARS) during the acute treatment phase: A series of 10 cases. Br J Psychiatr. 2004;184(4):359-60. doi: https://doi.org/10.1192/bjp.184.4.359

12. Jeong H, Yim H, Song Y, Ki M, Min J, Cho J, et al. Mental health status of people isolated due to Middle East Respiratory Syndrome. Epidemiol Health. 2016; 38(1):1-7. doi: https://doi.org/10.4178%2Fepih.e2016048

13. Park HY, Park WB, Lee SH, Kim JL, Lee JJ, Lee H, et al. Posttraumatic stress disorder and depression of survivors 12 months after the outbreak of Middle East respiratory syndrome in South Korea. BMC Public Health. 2020;20(1):1-9. doi: https://doi.org/10.1186%2Fs12889-020-08726-1

14. Hong X, Currier GW, Zhao X, Jiang Y, Zhou W, Wei J. Posttraumatic stress disorder in convalescent severe acute respiratory syndrome patients: a 4-year follow-up study. Gen Hosp Psychiatr. 2009;31(6):546-54. doi: https://doi.org/10.1016/j.genhosppsych.2009.06.008

15. Moradi Y, Mollazadeh F, Karimi P, Hosseingholipour K, Baghaei R. Psychological disturbances of survivors throughout COVID-19 crisis: a qualitative study. BMC Psychiatry. 2020;20(1):1-8. doi: https://doi.org/10.1186/s12888-020-03009-w

16. Moradi Y, Mollazadeh F, Karimi P, Hosseingholipour K, Baghaei R. Psychological reactions of COVID-19 patients to the stress caused by the disease crisis: A descriptive phenomenological study. Perspect Psychiatr Care. 2021; 57(4):1719-26. doi: https://doi.org/10.1111/ppc.12741

17. Huang C, Huang L, Wang W, Li X, Ren L, Gu X, et al. 6-month consequences of COVID-19 in patients discharged from hospital: a cohort study. The Lancet. 2021;397(10270):220-32. doi: https://doi.org/10.1016/s0140-6736(20)32656-8

18. Minayo, MCS. O desafio do conhecimento: pesquisa qualitativa em saúde. 11° edição. São Paulo-Rio de Janeiro: Hucitec-Abrasco; 2010.

19. Bardin, L. Análise de Conteúdo. 5ª edição. Lisboa-Portugal: Editora 70; 2009.

20. Son HM, Choi WH, Hwang YH, Yang HR. The lived experiences of COVID-19 patients in South Korea: A qualitative study. Int J Environ Res Public Health. 2021;18(14):1-19. doi: https://doi.org/10.3390%2Fijerph18147419

21. Schiavi M, Fugazzaro S, Bertolini A, Denti M, Mainini C, Accogli MA, et al. “Like before, but not exactly”: the Qualy-REACT qualitative inquiry into the lived experience of long COVID. BMC Public Health. 2022;22(1):1-12. doi: https://doi.org/10.1186/s12889-022-13035-w

22. Sun W, Chen WT, Zhang Q, Ma S, Huang F, Zhang L, et al. Post-Traumatic Growth Experiences among COVID-19 Confirmed Cases in China: A Qualitative Study. Clin Nurs Res. 2021;30(7):1079-87. doi: https://doi.org/10.1177/10547738211016951

23. Cava MA, Fay KE, Beanlands HJ, McCay EA, Wignall R. The experience of quarantine for individuals affected by SARS in Toronto. Public Health Nurs. 2005;22(5):398-406. doi: https://doi.org/10.1111/j.0737-1209.2005.220504.x

24. Sun N, Wei L, Wang H, Wang X, Gao M, Hu X. Qualitative study of the psychological experience of COVID-19 patients during hospitalization. J Affect Disord. 2021;1(278):15-22. doi: https://doi.org/10.1016/j.jad.2020.08.040

25. Pei H, Wu Q, Xie Y, Deng J, Jiang L, Gan X. A Qualitative Investigation of the Psychological Experiences of COVID-19 Patients Receiving Inpatient Care in Isolation. Clin Nurs Res. 2021;30(7):1113-20. doi: https://doi.org/10.1177/10547738211024807

26. Jesmi AA, Mohammadzade-Tabrizi Z, Rad M, Hosseinzadeh-Younesi E, Pourhabib A. Lived experiences of patients with COVID-19 infection: A phenomenology study. Med Glas. 2021;18(1):18-26. doi: https://doi.org/10.17392/1247-21

27. Venturas M, Prats J, Querol E, Zabalegui A, Fabrellas N, Rivera P, et al. Lived experiences of hospitalized covid‐19 patients: A qualitative study. Int J Environ Res Public Health. 2021;18(20):1-12. doi: https://doi.org/10.3390/ijerph182010958

28. Bilgin A, Kesik G, Ozdemir L. ‘The body seems to have no life’: The experiences and perceptions of fatigue among patients after COVID-19. J Clin Nurs. 2021;(9):1-11. doi: https://doi.org/10.1111/jocn.16153

29. Kingstone T, Taylor AK, O’Donnell CA, Atherton H, Blane DN, Chew-Graham CA. Finding the ‘right’ GP: a qualitative study of the experiences of people with long-COVID. BJGP Open. 2020;4(5):1-12. doi: https://doi.org/10.3399/bjgpopen20X101143

30. Missel M, Bernild C, Christensen SW, Dagyaran I, Berg SK. It’s Not Just a Virus! Lived Experiences of People Diagnosed With COVID-19 Infection in Denmark. Qual Health Res. 2021;31(5):822-34. doi: https://doi.org/10.1177/1049732321990360

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Published

2023-09-30

How to Cite

Diniz Silva, G., Okuda Tavares, K. ., & Malacarne, V. (2023). The experience of COVID-19 through the eyes of those who presented the disease: a qualitative study. Saúde E Pesquisa, 16(3), 1–20. https://doi.org/10.17765/2176-9206.2023v16n3.e11263

Issue

Vol. 16 No. 3 (2023): jul./set.

Section

Artigos Originais

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