Type 1 Diabetes management: self-management support needs in the transition to adolescence

Keywords: Adolescent, Childhood, Nursing, Self-care, Type 1 diabetes

Abstract

To analyze the self-management support needs for the type 1 diabetes management in the transition from childhood to adolescence. This qualitative research was mediated by semi-structured interviews with nine prepubescent children attended at an outpatient clinic and Family Health Units in Paraíba between September and December 2016. The data were interpreted by thematic analysis. Prepubescent children need knowledge for the administration and management of the disease in the spaces they audit, in addition to family and social media support in the transition of care. The multidisciplinary health team has not used singular self-management support in the management of diabetes, and that of primary care has not accommodated their needs, weakening bonds with the care network. Diabetes self-management needs refer to knowledge of the disease and relationships established with social support networks such as family, multidisciplinary team, and school.

Author Biographies

Annanda Fernandes de Moura B Batista, University of Illinois at Chicago - College of Nursing
Doctoral Student in Nursing at the University of Illinois at Chicago - College of Nursing. Researcher in Biobehavior Health Science Department at the University of Illinois at Chicago - College of Nursing, Chicago, IL, USA.
Vanessa Medeiros Nóbrega, Universidade Federal da Paraíba - UFPB
Nurse. Doctoral Student in Nursing by the Universidade Federal da Paraíba UFPB, Brazil.
Gabriela Lisieux Lima Gomes, Centro Universitário de João Pessoa - UNIPÊ
Nurse. Doctor´s Degree in the Postgraduate Program in Nursing at the Universidade Federal da Paraíba - UFPB. Professor in the Course of Nursing at the Centro Universitário de João Pessoa (UNIPE), Brazil
Mariana Matias Santos, Universidade Federal da Paraíba - UFPB
Nurse. Doctoral Candidate in Nursing in the Postgraduate Program in Nursing at the Universidade Federal da Paraíba (UFPB), Brazil.
Leiliane Teixeira Bento Fernandes, Universidade Federal da Paraíba - UFPB
Nurse. Doctoral Candidate in Nursing in the Postgraduate Program in Nursing at the Universidade Federal da Paraíba (UFPB), Brazil.
Neusa Collet, Universidade Federal da Paraíba - UFPB
Nurse. Doctor´s Degree in Nursing by the Escola de Enfermagem de Ribeirão Preto of the Universidade de São Paulo. Professor of the Department in Nursing in Collective Health of the Universidade Federal da Paraíba and in the Postgraduate Program in Nursing (Master´s and Doctor´s) and in the Course of professional Master´s in Family Health of the Rede Nordeste de Formação em Saúde da Família (RENASF- FIOCRUZ), Nucleadora UFPB, Brazil.

References

Casey B J. Simple models of self-control to circuit-based accounts of adolescent behavior. Annu. Rev. Psychol. 2015; 66(1); 295-319.

Commissariat PV, Kenowitz JR, Trast J, Heptulla, RA, Gonzalez JS. Developing a personal and social indentity with type 1 diabetes during adolescence: a hypothesis generative study. Qual Health Res. 2016; 26(5): 672–684.

Cunha M. Calidad de vida y diabetes: variables psico-sociales. Millenium J Educ, Techn, and Health. 2016; 34(13): 269-299.

Queen TL, Baucom KJW, Baker AC, Mello D, Berg CA, Wiebe DJ. Neighborhood disorder and glycemic control in late adolescents with type 1 diabetes. Social Sienc and Medicine. 2017; 183: 126-129.

Luszczynska A, Martin AH, Banik, A, Horodyska K, Knoll K, Scholz U. Self-Efficacy, planning, or a combination of both? a longitudinal experimental study comparing effects of three interventions on adolescents’ body fat. PLoS ONE. 2016; 11(7): 1-17.

Mendes EV. O cuidado das condições crônicas na atenção primária à saúde: o imperativo da consolidação da Estratégia da Saúde da Família. Brasília: Organização Pan-Americana da Saúde, 2012.

World Health Organization (WHO). Global Health Estimates Summary Tables: Projection of deaths by cause, age and sex. Genebra: WHO; 2015.

Turato ER. Tratado da Metodologia da Pesquisa Clínico-qualitativa. 6 Ed. Petrópolis: Vozes; 2013.

Minayo MCS. O desafio do conhecimento: pesquisa qualitativa em saúde. 14. Ed. São Paulo: Editora Hucitec; 2015.

Barbosa DC, Souza FGM, Leite JL. Pontuando interveniências nas relações familiares frente ao cuidado à criança com condição crônica. Texto Contexto Enferm. 2015; 24(1): 87-95.

Han Y, Faulkner MS, Fritz H, Fadoju D, Muir A, Abowd GD et al. A pilot randomized trial of text-messaging for symptom awareness and diabetes knowledge in adolescents with type 1 diabetes. J Pediatr Nurs. 2015; 30(6):

-861.

Flora MC, Gameiro MGH. Autocuidado dos adolescentes com diabetes mellitus tipo 1: conhecimento acerca da doença. Rev Enferm Refer. 2016; 6(9): 17-26.

Cochrane A. Developing autonomy in primary school aged children with type 1 diabetes. TEACH. 2015; 2(2): 8-11.

Pate T, Rutar M, Battelino T, Drobnic M, Bratina N. Support Group for Parents Coping with Children with Type 1 Diabetes. Zdrav Var, Trubarjeva. 2015; 54(2): 79-85.

Victório VMG, Andrade ALM, Silva AMB, Machado WL. Enumo SRF. Adolescentes com diabetes mellitus tipo1: estresse, coping e adesão ao tratamento. Saúde e Pesquisa. 2019; 12(1): 63-75.

Caccavale LJ, Weaver P, Chen R, Streisand R, Holmes CS. Family Density and SES Related to Diabetes Management and Glycemic Control in Adolescents With Type 1 Diabetes. Journal of Pediatric Psychology. 2015; 40(5): 500-508.

Gandhi KK, Baranowski T, Anderson BJ, Bansal N, Redondo MJ. Psychosocial aspects of type 1 diabetes in Latino - and Asian- American youth. Pediatric Research. 2016; 80(3): 347-355.

Lohan A, Morawska A, Mitchell A. A systematic review of parenting interventions for parents of children with type 1 diabetes. Child Care Health Dev. 2015; 41(6): 803-817.

Bertin RL, Elizio NPS, Medeiros CO, Fiori LS, Ulbrich AZ. Percepções do cotidiano alimentar de crianças e adolescentes com diabetes mellitus tipo 1. Rev Contexto e Saúde. 2016; 16(30): 100-109.

American Diabetes Association (ADA). Children and adolescents. Diabetes Care. 2017; 38(1): 70-76.

Law, JR, Yesiltepe-Mutlu G, Meyer E, Ozsu E, Çizmecioglu F et al. Research: educational and psychological issues adolescents with type 1 diabetes mellitus experience psychosensorial symptoms during hypoglycaemia. Diabet. Med. 2014; 31(1): 1245-1251.

Lawrence SE, Cummings EA, Pacaud D, Lynk A, Metzger DL. Managing type 1 diabetes in school: Recommendations for policy and practice. Paediatr Child Health. 2015; 20(1): 35-39.

Pennafort VPS, Queiroz MV, Nascimento LC, Guedes MV. Network and social support in family care of children with diabetes. Rev Bras Enferm, 2016; 69(5): 856-863.

Feio A, Oliveira CC. Confluência e divergência conceituais em educação em saúde. Saúde Soc. 2015; 24(2): 703-715.

Ministério da Saúde. Caderno de saúde da criança: crescimento e desenvolvimento. Brasília - DF: Ministério da Saúde; 2012.

Brancaglioni BCA, Rodrigues GC, Damiao EBC, Queiroz MS, Nery M. Crianças e adolescentes que convivem com diabetes e doença celíaca. Rev Gaucha Enferm. 2016; 37(1): 1-8.

Greco-Soares JP, Dell'aglio DD. Treatment adherence in adolescents with type 1 diabetes mellitus. Psic., Saúde & Doenças. 2017; 18(2): 322-334.

Koller D, Khan N, Barret, S. Pediatric Perspectives on Diabetes Self-Care: A process of achieving acceptance. Qual Health Res. [Internet]. 2014 [cited 2017 Jan 12]; 25(2):1-12..

Malaquias, TSM, Marques CDC, Faria ACP, Pupulim JSL, Higarashi IH. A criança e o adolescente com diabetes mellitus tipo 1: desdobrar do cuidado familiar. Cogitare Enferm. 2016; 21(1): 1-7.

Sparapani VC, Borges ALV, Dantas IRO, Pan R, Nascimento LC. A criança com Diabetes Mellitus tipo 1 e seus amigos: a influência dessa interação no manejo da doença. Rev. Latino-Am. Enfermagem. 2012; 20(1): 1–9.

Published
2020-06-12
Section
Artigos Originais