Validation of educational materials for health promotion in fibromyalgia

Validação de material educativo para promoção da saúde na fibromialgia

Authors

DOI:

https://doi.org/10.17765/2176-9206.2025v18e12916

Keywords:

Fibromyalgia, Health Education, Self-care, Pain Education, Health promotion

Abstract

 

Fibromyalgia is a rheumatic syndrome that interferes with a person's functional capacity and quality of life. It is important to note that the initial non-pharmacological strategy should be patient education, focusing on the process of adaptation and coping with fibromyalgia and quality of life. The objective of this study was to validate educational material to promote health in fibromyalgia. The material was validated using the Delphi technique with 23 experts judges (professionals with experience in rheumatology, education, and health promotion) and 23 target audience judges (people with fibromyalgia). The groups evaluated the difficulty and convenience of the educational material. Content validation was performed using the Content Validity Index and the Kappa Coefficient. The educational material obtained the feasibility from the expert judges and the target audience, with mean values of all evaluated items of 0.78±0.03 and 0.91±0.06, respectively. Additionally, reliability also showed mean values of all evaluated items classified as good, excellent, and perfect for the expert judges (0.97±0.05) and the target audience (0.86±0.10). It is concluded that the educational material regarding content and language was validated and showed reliability, proving to be a relevant instrument for the target audience and expert judges.

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Author Biographies

Amanda Januário Lira, University of São Paulo

Graduated in Physiotherapy from the Faculty of Medicine of the University of São Paulo, FMUSP.

Letícia Assis Couto, University of São Paulo

She has a degree in Physiotherapy from the Faculty of Medicine of the University of São Paulo (FMUSP) and is currently studying for a master's degree in Rehabilitation Sciences at FMUSP.

Amélia Pasqual Marques, University of São Paulo

He holds a degree in Physiotherapy from the University of São Paulo (1973), a master's degree in Special Education (Educ. do Índio Especial) from the Federal University of São Carlos (1990), a PhD in Psychology (Experimental Psychology) from the University of São Paulo (1994) and a post-doctorate degree from the School of Medicine of the University of São Paulo in 2004. He is currently an Associate Professor in the Department of Physiotherapy, Speech Therapy and Occupational Therapy of the School of Medicine of the University of São Paulo. He teaches classes in the Physiotherapy Course at FMUSP and supervises the Postgraduate Program in Rehabilitation Sciences. He has experience in the area of ​​Physiotherapy with an emphasis on Fibromyalgia, working mainly on the following topics: fibromyalgia, physiotherapy, quality of life, muscle stretching and posture. He is a reviewer for numerous national and international scientific journals, associate editor of the journal Trials and Editor-in-Chief of the Journal Fisioterapia e Pesquisa.

Mateus Dias Antunes, University of São Paulo

I am a physiotherapist and master in Health Promotion, currently studying for a PhD in Rehabilitation Sciences at the Faculty of Medicine of the University of São Paulo, with a sandwich period at the University of Salamanca, in Spain. I currently work as an Internship Preceptor in the Physiotherapy course at the Pontifical Catholic University of São Paulo (PUC-SP) and also worked as a Professor in the Physiotherapy course at Faculdade Estácio - Santo André. I am a member of the Brazilian Association of Physiotherapy Education (ABENFISIO), and have been a member of the Board of Directors of the São Paulo Region since 2023. I hold the Title of Specialist in Physiotherapy in Rheumatology from the Federal Council of Physiotherapy and Occupational Therapy (COFFITO). In the editorial field, I am Associate Editor of the Journal Trials (London) and Deputy Editor of the Journal Saúde e Pesquisa, in addition to working as a reviewer for national and international scientific journals. In 2024, I was named a Young Researcher at Sigma Xi - The Scientific Research Honor Society. My experience focuses on the area of ​​Public Health, with an emphasis on Health Promotion, addressing topics such as rheumatic diseases, aging, health education and strategies that promote the health of individuals, groups and families.

References

1. Wolfe F, Clauw DJ, Fitzcharles MA, Goldenberg DL, Katz RS, Mease P, et al. The American College of Rheumatology preliminary diagnostic criteria for fibromyalgia and measurement of symptom severity. Arthritis Research and Therapy. 2010;62(5):600-610. https://doi.org/10.1002/acr.20140

2. Miranda NA, Berardinelli LM, Saboia VM, Brito ID, Santos RD. Praxis interdisciplinar de cuidado em grupo de pessoas que vivem com fibromialgia. Revista Brasileira de Enfermagem. 2016;69(6):1115-23. https://doi.org/10.1590/0034-7167-2016-0279

3. Marques AP, Santo A, Berssaneti AA, Matsutani LA, Yuan SLK. Prevalence of fibromyalgia: literature review update. Revista Brasileira de Reumatologia. 2017;57(4):356-63. https://doi.org/10.1016/j.rbre.2017.01.005

4. Ruiz I, Ubago MC, Bermejo MJ, Plazaola J, Olry A, Hernández E. Differences in sociodemographic, clinical, psychosocial and health care characteristics between men and women diagnosed with fibromyalgia. Revista Clínica Española. 2007;207:433-439. https://doi.org/10.1157/13109832

5. Sicras-Mainar A, Rejas J, Navarro R, Blanca M, Morcillo A, Larios R, et al. Treating patients with fibromyalgia in primary care settings under routine medical practice: a claim database cost and burden of illness study. Arthritis Research & Therapy. 2009;11(2):1-14. https://doi.org/10.1186/ar2673

6. Brandão Júnior PMCB, Besset VL. Dor crônica: um problema de saúde pública, uma questão para a psicanálise. Polêm!ca, 2015;15(3):25-41. https://doi.org/10.12957/polemica.2015.19359

7. Higgs JB. Fibromyalgia in Primary Care. Primary Care: Clinics in Office Practice. 2018;45(2):325-341. https://doi.org/10.1016/j.pop.2018.02.008

8. Kwiatek R. Treatment of fibromyalgia. Australian Prescriber. 2017;40(5):179-183. https://doi.org/10.18773/austprescr.2017.056

9. Sosa-Reina MD, Nunez-Nagy S, Gallego-Izquierdo T, Pecos-Martín D, Monserrat J, Álvarez-Mon M. Effectiveness of Therapeutic Exercise in Fibromyalgia Syndrome: A Systematic Review and Meta-Analysis of Randomized Clinical Trials. BioMed Research International. 2017;17(1):1-14. https://doi.org/10.1155/2017/2356346

10. Saltareli S, Pedrosa DFA, Hortense P, Sousa FAEF. Avaliação de aspectos quantitativos e qualitativos da dor na fibromialgia. Revista Brasileira de Reumatologia, 2008;48(3):151-6. https://doi.org/10.1590/S0482-50042008000300004

11. Antunes MD, Marques AP. The role of physiotherapy in fibromyalgia: Current and future perspectives. Frontiers in Physiology. 2022;13(1):e1701. https://doi.org/10.3389/fphys.2022.968292

12. Goldenberg DL. Multidisciplinary modalities in the treatment of fibromyalgia. The Journal of Clinical Psychiatry. 2008;69 Suppl 2:30-4.

13. Sim J, Madden S. Illness experience in fibromyalgia syndrome: a metasynthesis of qualitative studies. Social Science & Medicine. 2008 Jul;67(1):57-67. https://doi.org/10.1016/j.socscimed.2008.03.003

14. Lempp HK, Hatch SL, Carville SF, Choy EH. Patients' experiences of living with and receiving treatment for fibromyalgia syndrome: a qualitative study. BMC Musculoskeletal Disorders. 2009;10:124. https://doi.org/10.1186/1471-2474-10-124

15. Arnold LM, Clauw DJ, Dunegan LJ, Turk DC. A framework for fibromyalgia management for primary care providers. Mayo Clinic Proceedings. 2012 May;87(5):488-96. https://doi.org/10.1016/j.mayocp.2012.02.010

16. Ministério da Saúde: Departamento de Atenção Básica. Autocuidado [acesso em 08 mar 2019]; Available from: http://dab.saude.gov.br/portaldab/autocuidado.php.

17. Antunes MD, Couto LA, Bertolini SMMG, Loures FCNR, Schmitt ACB, Marques AP. Effectiveness of interdisciplinary health education programs for individuals with fibromyalgia: A systematic review. Journal of Education and Health Promotion. 2021;10(64):1-8. https://doi.org/10.4103/jehp.jehp_592_20

18. Wali H, Hudani Z, Wali S, Mercer K, Grindrod K. A systematic review of interventions to improve medication information for low health literate populations. Research in Social and Administrative Pharmacy. 2016;16:830-864. https://doi.org/10.1016/j.sapharm.2015.12.001

19. Echer IC. Elaboração de manuais de orientação para o cuidado em saúde. Revista Latino-Americana de Enfermagem. 2005;13(5):754-757. https://doi.org/10.1590/S0104-11692005000500022

20. Heidemann ITSB, Wosny ADM, Boehs AE. Promoção da Saúde na Atenção Básica: estudo baseado no método de Paulo Freire. Ciência & Saúde Coletiva. 2014;19(8):3553-59. https://doi.org/10.1590/1413-81232014198.11342013

21. Lobiondo-Wood G, Haber J. Pesquisa em enfermagem: me?todos, avaliac?a?o cri?tica e utilizac?a?o. 4. ed. Rio de Janeiro: Guanabara Koogan, 2011.

22. Polit DF, Beck CT. Fundamentos de Pesquisa em enfermagem: avaliac?a?o de evide?ncias para as pra?ticas da enfermagem. 7. ed. Porto Alegre: Artmed, 2011. v. 1

23. Galindo Neto M, Caetano JÁ, Barros LM, Silva TMD, Vasconcelos EMRD. Primeiros socorros na escola: construção e validação de cartilha educativa para professores. Acta Paulista de Enfermagem. 2017;30(1):87–93. https://doi.org/10.1590/1982-0194201700013

24. Lopes MVO Silva VM, Araújo TL. Methods for Establishing the Accuracy of Clinical Indicators in Predicting Nursing Diagnoses. International Journal of Nursing Knowledge. 2012;23(3):134–139. https://doi.org/10.1111/j.2047-3095.2012.01213.x

25. Vianna HM (1982) Testes em Educação, fourth edition, Vol. 1. São Paulo: Ibrasa.

26. Wolfe F. et al. 2016 Revisions to the 2010/2011 fibromyalgia diagnostic criteria. Seminars in Arthritis and Rheumatism. 2016;46(3):319–329. https://doi.org/10.1016/j.semarthrit.2016.08.012

27. Costa BRL. Bola de neve virtual: o uso das redes sociais virtuais no processo de coleta de dados de uma pesquisa científica. Revista interdisciplinar de Gestão Social. 2018;7(1):15–37.

28. Moura IH, Silva AFR, Rocha AESH, Lima LHO, Moreira TMM, Silva ARV. Construção e validação de material educativo para prevenção de síndrome metabólica em adolescents. Revista Latino-Americana de Enfermagem. 2017;25(1):e2934. https://doi.org/10.1590/1518-8345.2024.2934

29. Doak CC, Doak LG, Root JH. Teaching patients with low literacy skills. Philadelphia: J.B. Lippincott, 1996.

30. Galdino YLS, Moreira TMM, Marques ADB, Silva FAA. Validation of a booklet on self-care with the diabetic foot. Revista Brasileira de Enfermagem. 2019;72(3):780–787. https://doi.org/10.1590/0034-7167-2017-0900

31. Bispo GLR, Pedrosa EN, Wanderley RMM, Corrêa MSM. Construção e validação do instrumento para consulta de enfermagem puerperal C. Revista de Enfermagem UFPE on-line. 2012;6(3):596–605. https://doi.org/10.5205/1981-8963-v6i3a7138p596-605-2012

32. Tibúrcio MP, Melo GD, Balduíno LSC, Costa IKF, Dias TYDAF, Torres GDV. Validação de instrumento para avaliação da habilidade de mensuração da pressão arterial. Revista Brasileira de Enfermagem. 2014;67(4):581-587. https://doi.org/10.1590/0034-7167.2014670413

33. Pereira MG. Epidemiologia: teoria e prática. Rio de Janeiro: Guanabara Koogan; 1995.

34. Waltz CF, Bausell RB. Nursing research: design, statistics and computer analysis. Philadelphia: F. A. Davis, 1981.

35. Alexandre NMC, Coluci MZO. Validade de conteúdo nos processos de construção e adaptação de instrumentos de medidas. Ciência & Saúde Coletiva. 2011;16(7):3061-3068. https://doi.org/10.1590/S1413-81232011000800006

36. Lynn MR. Determination and quantification of content validity. Nursing Research. 1986;35(6):382–385. https://doi.org/10.1097/00006199-198611000-00017

37. Sena JF. Construção e validação de tecnologia educativa para o cuidado de pessoas com estomia intestinal. 2017. Dissertação de Mestrado. Brasil.

38. Ximenes MAM, Fontenele NÂO, Bastos IB, Macêdo TS, Galindo NM, Caetano JÁ, et al. Construção e validação de conteúdo de cartilha educativa para prevenção de quedas no hospital. Acta Paulista de Enfermagem. 2019;32(4):433-441. https://doi.org/10.1590/1982-0194201900059

39. Cruz FOAM, Ferreira EB, Vasques CI, Mata LRF, Reis PED. Validação de manual educativo para pacientes com câncer de cabeça e pescoço submetidos à radioterapia. Revista Latino-Americana de Enfermagem. 2016;24(1):e2706. https://doi.org/10.1590/1518-8345.0949.2706

40. Áfio ACE, Balbino AC, Alves MDS, Carvalho LV, Santos MCL, Oliveira NR. Análise do conceito de tecnologia educacional em enfermagem aplicada ao paciente. Rev Rene. 2014;15(1):158-165.

41. Vieira ASM, Castro KVFD, Canatti JR, Oliveira IAVFD, Benevides SD, Sá KN. Validation of an educational booklet for people with chronic pain: EducaDor. BrJP. 2019;2(1):39-43. https://doi.org/10.5935/2595-0118.20190008

42. Antunes MD, Schmitt ACB, Marques AP. Amigos de Fibro (Fibro Friends): development of an educational program for the health promotion of fibromyalgia patients. Prim Health Care Res Dev. 2022;23(1):e44. Doi: https://doi.org/10.1017/S1463423621000773

43. Antunes MD, Schmitt ACB, Marques AP. Amigos de Fibro (Fibro Friends): Validation of an Educational Program to Promote Health in Fibromyalgia. Int J Environ Res Public Health. 2022;19(9):e5297. Doi: https://doi.org/5297.10.3390/ijerph19095297

44. Antunes MD, Rocha Loures FCN, Souza IMB, Cruz AT, Januário PO, Pinheiro MMLS, et al. A web-based educational therapy intervention associated with physical exercise to promote health in fibromyalgia in Brazil: the Amigos De Fibro (Fibro Friends) study protocol. Trials. 2023;24(1):e655. Doi: https://doi.org/10.1186/s13063-023-07588-3

45. Antunes MD, Schmitt ACB, Marques AP. Amigos de Fibro (Fibro Friends): validation of an e-book to promote health in fibromyalgia. Prim Health Care Res Dev. 2023;24(1):e41. Doi: https://doi.org/10.1017/S1463423623000270

46. Antunes MD, Schmitt ACB, Marques AP. AB0912-HPR—Amigos de Fibro (Fibro Friends): Educational program to promote the health of people with fibromyalgia in Brazil. Ann Rheum Dis. 2021;80:1478.1-1478. doi: http://dx.doi.org/10.1136/annrheumdis-2021-eular.2598

47. Antunes MD, Torres SF, Yuan SLK, Schmitt ACB, Marques AP. Amigos de FIBRO (FIBRO Friends): development of a multidisciplinary health promotions program for individuals. Clin Exp Rheumatol. 2021;39:218

48. Antunes MD, Schmitt ACB, Marques AP. Amigos de Fibro (Fibro Friends): development of a multidisciplinary health promotions program for fibromyalgia in Brazil. J Clin Rheumatol. 2021;27

49. Antunes MD, Schmitt ACB, Marques AP. Amigos de Fibro (Fibro Friends): Validation of an educational program to promote the health of patients with fibromyalgia in Brazil. Ann Rheum Dis. 2022;81:1871. doi: http://dx.doi.org/10.1136/annrheumdis-2022-eular.2197

50. Antunes MD, Schmitt ACB, Marques AP. Amigos de Fibro (Fibro Friends): Validation of an educational e-book to promote the health of people living with fibromyalgia in Brazil. Ann Rheum Dis. 2022;81:1871. doi: http://dx.doi.org/10.1136/annrheumdis-2022-eular.2201

Published

2024-08-17

How to Cite

Lira, A. J., Couto, L. A., Marques, A. P., & Antunes, M. D. (2024). Validation of educational materials for health promotion in fibromyalgia: Validação de material educativo para promoção da saúde na fibromialgia. Saúde E Pesquisa, 18, e12916. https://doi.org/10.17765/2176-9206.2025v18e12916

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